I feel like I am on an emotional roller coaster lately. I just want to take Pnut somewhere and have them "fix" the problem. I know there is no such miracle cure for Autism, but it seems to be getting worse instead of better. When we got the diagnosis three years ago I thought I was dealing with it pretty well and ready to do everything possible to help my little man. The Psychologist gave us great hope that with the right intervention by the time he was 6 or 7 he would blend and most likely no one would ever know any difference. We went through the school, even ended up getting advice from a lawyer to get more services. We have never got everything we asked, not even close, but I was still hopeful. We continued outside therapy to assist with his progress. Three and a half years later, he is almost 7 and we have gone backwards. After meeting with the same Psychologist she confirmed he has regressed instead of progressing. It is so disheartening, but I knew this was the case which is why I scheduled the appointment. I have always felt, due in part to the response of others, that I make more of his issues than they really are. Not anymore, I now that it's not in my head there are real issues it just takes someone to stop judging and look at the whole picture. I just feel I sat idle too long and now we have a long road ahead of us to correct the issues. I fought off the medication for as long as I could and finally caved and began going through the motions with the Psychiatrist. I feel yet again I have failed him but I know he needs extra help to be able to slow down enough to let the behavioral therapies help him learn coping mechanisms. I go through these phases where I read an article and I try this or that but I really have not stuck with anything long enough to make any kind of difference. I really need someone to keep me on target, which is really not saying a lot for my perseverance. It's not that I don't want to help him, Lord knows I want to make things right for him. It is not about making it easier on me it is about getting him what he needs. I go through these pity phases and pretty much curl up in a ball. I can't let myself do that anymore! I really need to kick myself in the behind and keep kicking!! Consider this my kick!
Tuesday, February 1, 2011
Thursday, July 8, 2010
Ok, Summer is a VERY TRYING time of year. I knew Pnut would have some issues adjusting from the school schedule to the less scheduled summer, but I really didn't think it would be like this. I am at a loss for ways to help him.
He has become obsessed with anything electronic. Comupters, gaming systems, calculators....you get the picture. I know everyone says their kids are addicted and obsessed with games, even typical kids. I know they are trying to make light of it and make it seem "normal". I just can not get them to understand the extent of his obsession. He can talk of nothing else. He wakes up asking to play a game, and all day long that is all he can talk about. If you tell him no he can't play a game he goes crazy, screaming, hitting and kicking. He just totally looses it, We make him earn game time at home, but when his time is up he looses it. Throwing anything in sight, including chairs, and comes out hitting and kicking. I have expressed concern with his therapists and they feel we are looking at OCD. We have an appointment with the psychiatrist, but it is two months away. I am not a big fan of medicating my child and have thus far stuck to behavioral therapies. We recently started delving into some vitamin suppliments. Omega 3 is supposed to help with behavior in children with ADD and ADHD, which most kids on the spectrum also have, so we started that. No change as of yet.
Our newest adventure will begin in a week and a half. We are meeting with a Chairopractor. I know what you are thinking, but we are exploring all options. A friend usese her and she reccomended we talk to her from a nutrition standpoint. I have talked with her and got a little better understanding of what she does. I am intrugued about the information she can gather from the hair analysis she does. If I can help him come back to the real world and eliminate his anger without chemicals I am going to explore it.
I am sure everyone I talk to is sick of hearing about Autism, behavior issues, suppliments and such. I am so sorry my mind has been on one track this summer. This is the worst I have seen him and it frankly scares the crap out of me. I feel like I am loosing my child. He is typically such a sweet loving child and I want him back!
Tuesday, January 19, 2010
I know it's been a REALLY long time since I have posted anything at all on here. So much so that my header is not coming up. Is it that I haven't had much to say? Life getting in the way? Both! Things are crazy now, Peanut is in Elemetary school and Sweet Pea started 3K so I thought I would have lots of time to get things done. Not so much. I feel like the days are all blending together. Whoever hit the fast forward button needs to stop.
A much needed girls trip is scheduled in less than a week and a half so maybe I can catch my breath. The trip is going to be awesome, I just can't get myself to stop thinking about the mess I will come home to. My hubby is wonderful with the boys when it is just them, he just forgets to do the stuff around the house. Maybe he will surprise me with a clean house when I get back. Dare I dream?
Monday, November 9, 2009
So I really want to win this and I will be posting and entering as many times as I can. I know my chances are slim since there are so many of us TWIHARDS, but I still got to try!!!!!
Friday, February 13, 2009
I can't stand LIARS!!! If there is one thing in this world that ticks me off it is for someone to blatantly lie to me! You know who you are so I'm not naming names, feel the burn when you read this because you know you are WRONG! Not only did you lie to me, but you lied about me! I tried to be your friend but you make that impossible. We invited you to hang out with us and you always had an excuse, but when we don't invite you you get upset. WTH!! I listened to you constantly talk about "the other group" and worry about what they were doing and tried to help you feel you were part of a group also and it's ok for them to do things together because we all did. Little did I know your obsession with that group was because you so desperately wanted to be in that group and our group of friends wasn't good enough for you. I'm done, you create your own karma and just remember what you do comes back to you three fold. No that is not a threat, it is just the way the universe works. And don't forget those people you are reaching out to now, they will catch on too!
I'm good with me. I feel I have done everything possible to reach out to you and be a friend. I hope one day you find what you are looking for.