Thursday, November 1, 2007

School Board SUCKS!!!!!

I guess I shouldn't be surprised that I am having so many problems getting Peanut into the preschool program. Absolutely EVERYONE I have met that has dealt with them, in different states even, has said the same thing; "You have to FIGHT to get you child what they need." Now I don't mind fighting and I will continue to fight them until he gets the services he needs, however I think it is awful that he is missing out on help that he needs in the meantime. Why do they stonewall you? Why to they try to push you off and give you the least possible help and make you wait weeks and weeks before you can make another meeting to discuss the situation. Fist I was told the program was full and not accepting any other children. When I said that I thought if there was a need they had to find a spot, the tune changed. It took a month to get that first meeting. I brought with me all the paper work from the initial speech evaluation and the evaluation from Mitchel's Place (who by the way are awesome to work with). They took the report and looked at the diagnosis page and I think the woman said three or four times "There is no diagnosis, did you hear there is no diagnosis". That was our first clue this was not going to go as we wanted. After talking with them for an hour they decided they needed to do some "Testing" of their own. Although I didn't know what else they could test, I said ok. Three weeks later we go in and they do their tests. The same one's he already had done at Mitchel's! Which I have been told standardized test completed within a year of the test are not valid, but whatever. So they decide to work with him in his "Natural Environment", which in this case they considered a preschool that he had attended one day as his natural environment. (If you are following this we started the process in the beginning of July and as you can see by this time it was September)
We decided to go with it and see how things went. In mid October we went for a follow up with the psychologist and he was then diagnosed with PDD-NOS. The diagnosis was given after another evaluation session with the psychologist and a review with the therapist that he had been seeing since the beginning of August. We were told that he needs to be in a classroom with teachers who are trained to handle children with Autism Spectrum Disorders. So back to the School Board we go.
We meet again and they pretty much told me they will not put him in the preschool period! They feel he is making progress with the people they are sending into his preschool for a half hour two days a week. These women who have each seen Peanut four times for a half hour each feel that they have a better grasp of where he is and what is best for him than either me or the therapist who have been interacting with him since July. Now if you ask me I think there is something wrong there! The notes they send home say that he does all kinds of things that neither I nor his REAL therapist have seen him do. Makes you wonder if they are fudging a little. Case in point the one lady said he told her about his Halloween costume, funny I have been prepping him for two or three weeks and I still can't get him to tell me he has a costume on. When I called her on it in the meeting she said that he said he had a pirate costume on "well at least I hope it was a pirate, because that's what I said it was". HELLO! You just said it right there you told him it was a pirate and we know he has issues with echolalia! It's like they never read the report that was given to them! I precede to tell them I think it stinks that we are supposed to consider what's best for the child and I just don't feel that is a factor here. Oh, that one lady was sooooo smug and kept telling me they have to follow the law, which they are as she says! Problem is the law is written so broad that it is open to interpretation! To this she tells me to write my congressman if I want it changed. B*TCH!!!!!! Now I have given the reigns to our Psychologist and she is going to see what she can do. Next step is to go to a lawyer.

Why do they have to make this so hard, aren't we already dealing with enough sress to add this to it! As and old friend would say "Rat Bastards"!

4 Response:

Anonymous said...

I am sorry they are being such assholes! The child really should come first, but I'm afraid the dollar usually manages to come out on top.

Sue their asses off!

Valerie said...

I know this is such a difficult time for you but it is SO refreshing to hear a parent recognizing that their child needs help and fighting hard to get that help. I am a pre-school teacher at a local church and over the last 4 years I have had 3 little boys that I have suspected have had some degree of autism or developmental delays. Our school provides materials/checklists to parents, observations by an early education specialist, etc. So many parents drop their children off in the morning, pick them up in the afternoon and never once ask about the child's day. I can't tell you how many parents over the years have NEVER asked a developmental question: is he sharing? how is she with the other children? does he participate in games / circle time? what are his favorite activities during playschool? NOTHING! We even had one mother who wanted her child to repeat the year because she was pregnant and would "really need a break" when the new baby arrives. Our director finally had to sit down w/ her one on one and tell her point blank: "We cannot provide the care and special attention your son needs."
Stay strong! Keep fighting and demand what is best for your child. I'll be thinking of you!

I'm a Mom!..? said...

I agree, the child should come first and unfortunately they are the ones that suffer from incompetent people, hang in there and keep fighting!

J said...

So, are the board members trained to make a diagnosis? Because it seems like the people who are trained are clearly recommending intervention and they're just blatantly ignoring it. Keep on fighting!

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